As soon as I met other Deaf kids, and fostered a friendship with them, I realized that I wasn’t so different! And it’s okay to stick up for myself and to get what I need, because I am not alone.
an adolescent with hearing loss
The Hearing Loss Experience Journal is a collection of stories and personal experiences from patients, families, and clinicians who are or work with those who are deaf or hard of hearing.
There may be some emotional discomfort associated with reading the stories of children and parents describing their experiences with deaf or hard of hearing, but we hope that families learn from the stories of others facing similar experiences.
Child & Adolescent Stories:
…do whatever you can do to embrace it, celebrate it, and learn to love it as a special gift.
Melanie, 23, a young adult with acquired hearing loss
- Understanding my Hearing Loss
- Some challenges
- Interventions and surgeries
- How it affects my family: siblings speak
- How it affects my friends
- How it affects me at school
- How it affects me in sports and other activities
- Growing up with Hearing Loss
- Advice for others
There are so many people out there who can and want to help you and you don’t realize how many children and families have dealt with this before and who are going to deal with it in the future. There are so many people out there who can help you and who are interested.
- Finding out my child has Hearing Loss
- Interventions and surgeries
- Language development
- How it affects my child with friends
- How it affects my child at school
- How it affects my child in sports and other activities
- Systems of support for parents
- How we cope
- Words of wisdom
There are many kids who see themselves as Deaf, and they are happy for it and proud of being Deaf. Having an accepting and affirming attitude within the family helps to prepare kids for anything. When kids are not too embarrassed to wear hearing aids, or a cochlear implant, or use sign language in public…when kids feel in their core they are completely “okay,” they’ll handle themselves well outside the family and in life.
Terrell Clark, PhD, Pediatric Psychologist
- Our experts
- Understanding interventions and implants
- Importance of language development and literacy
- How we work with families
- How we work with schools
- Rewards of working with families
- Advice from clinicians
The Hearing Loss Experience Journal was created by the Boston Children’s Hospital Department of Psychiatry and the Deaf and Hard of Hearing Program. A group of parents and health care providers reviewed these contributions for appropriateness.
Editor’s note: Please keep in mind that every patient is different, and discussions of alternative treatments, complications, and timelines may not apply to you. Additionally, some families identify medications and treatments that work well for them. The Experience Journals do not endorse specific methods. Each individual is different, and we invite you to discuss treatments with your doctors and nurses to see if they are right for you.