The Vascular Anomalies Experience Journal was made possible by contributions from the Weitzman Family Fund and by the Boston Children’s Hospital Department of Psychiatry. Dr. David DeMaso, Editor, and Sasha Taylor, former Project Coordinator, and Jennifer Holland, Project Coordinator created the Vascular Anomalies Experience Journal for families facing child and adolescent Vascular Anomalies.
We would like to thank the following individuals for their oral and video contributions to this project: Steven Fishman, MD, John Mulliken, MD, Ahmad Alomari, MD, MSc, FSIR, Mary Beth Silvia, MS, FNP-BC, and Erin Spera, MS, CPNP.
We are also indebted to the following individuals for their valuable editing input: Cameron Trenor, MD, Marilyn G Liang, MD, Arin Greene, MD, MMSc, Joseph Upton, MD, Samantha Spencer, MD, Horacio Padua, MD, Gulraiz Chaudry, MB, ChB, MRCP, FRCR, Brian Dillon, MD, Darren Orbach, MD, PhD, Myron L Belfer, MD, Brooke Corder, MSW, LCSW, Madelyn Labella, MA, Mercedes Villalonga, Hollis Gesen, Stuard Goldman, MD, Elizabeth Wharff, PhD, LICSW, Christina Nikitopoulous, EdM, Sneha Rao, RN, Andrew Hennessey, Shari Trevey, Vitore Cupi, and Riley Cole. The video clips were produced and edited by Benjamin Hartman, formerly of Boston Children’s Hospital Media Communications.
Finally, and most importantly, we extend enormous gratitude to all of the families who generously provided their stories for the Vascular Anomalies Experience Journal.