What I know now

I know a lot of things that I probably shouldn’t. I mean, this was an entire facet of the world […]

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Dealing with the unknown and living in the now

When she was born and she had her first surgery and I remember through every surgery always thinking like, “There’s […]

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Keeping the faith

Nick: Keep the faith, whatever it is that you do. Shana: Not everybody’s religious, but we just do a lot […]

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Getting involved and giving back

I did so much research on the condition and you know for the past 16 or 17 years, I’ve spoken […]

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