Cardiac Experience Journal Family ContributionsChild ContributionsFamily VideosClinician Contributions
One Family's Dialogue

The following are video clips and other responses from an interview with two parents whose son, Jake, was born with hypoplastic left heart syndrome.

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A Routine
An Entire Life Thing
Anticipation
Ask Questions
Badge of Courage
Balance Each Other Out
Behave
Being Normal
Better All the Time
Blankie and Elmo
Cardiac ICU     
Coming Home
Denial/Pretty Amazing
Figured It Out
Fix the Transplant
Go to be Alone
Handing Him Over
His Disease
I.V.s and Bugs
More Important Than Work
No More Open Heart Surgeries
Others Are Sympathetic
Part of the Process
People Like Us
Picture of My Heart
Staff Assessing the Parents
Stay for Procedures
Success for 5 Years
Supportive Employer
Team Decisions
The Day of Diagnosis
The Liaison Nurse
They've Been Through It
Trips to the Hospital
Updates During Surgery
Used to the Hospital
Videos, Friends & Chest Tubes
Visiting & IV's: A 5 Year Old Sibling View
We Fight
Wild Man


 

   Copyright © 2007, Children's Hospital Boston
Department of Psychiatry.
All Rights Reserved.

The information on this website should not be taken as medical advice, which can only be given to you by your personal health care professional.

Updated February 1, 2007
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