Family Videos

One Family's Dialogue: The following are video clips and other responses from an interview with two parents whose son, Jake, was born with hypoplastic left heart syndrome.

PLEASE NOTE: Files marked with this () icon are QuickTime movies and may take several minutes to download depending on your connection speed. Click here to download the Quicktime movie player.

Hospital Relations:

• Blankie and Elmo

• Part of the Process

• A Routine

• Staff Assessing the Parents

• The Liaison Nurse

• Updates During Surgery

• Balance Each Other Out

The Outside World:
• An Entire Life Thing

• Others Are Sympathetic

• Being Normal

• Wild Man

• Supportive Employer

• They've Been Through It

Understanding the Disease:

• The Day of Diagnosis

• His Disease

• Figured It Out

• Success for 5 Years

• Better All the Time

• No More Open Heart Surgeries

• Picture of My Heart

• Videos, Friends & Chest Tubes

• Fix the Transplant

• People Like Us

• Ask Questions

Coping:

• Denial/Pretty Amazing

• Go to be Alone

• Stay for Procedures

• We Fight

Family Life:

• Coming Home

• Team Decisions

• More Important Than Work

• Visiting & IV's: A 5 Year Old Sibling View

Jake and the Hospital

• Trips to the Hospital

• Cardiac ICU

• Anticipation

• Handing Him Over

• Behave
• Badge of Courage

• Used to the Hospital

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These videos are QuickTime movies and may take a couple of minutes to download, depending on the speed of your internet connection. You must have Quicktime Movie player installed on your computer in order to view these movies. Click here to download the Free Quicktime player.