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One Family's Dialogue: The following are video clips and other responses from an interview with two parents whose son, Jake, was born with hypoplastic left heart syndrome.
PLEASE NOTE: Files marked with this () icon are QuickTime movies and may take several minutes to download depending on your connection speed.

Click here to download the Quicktime movie player.

Hospital Relations:

Blankie and Elmo

Part of the Process

A Routine

Staff Assessing the Parents

The Liaison Nurse

Updates During Surgery

Balance Each Other Out

The Outside World:
An Entire Life Thing

Others Are Sympathetic

Being Normal

Wild Man

Supportive Employer

They've Been Through It

Understanding the Disease:

The Day of Diagnosis

His Disease

Figured It Out

Success for 5 Years

Better All the Time

No More Open Heart Surgeries

Picture of My Heart

Videos, Friends & Chest Tubes

Fix the Transplant

People Like Us

Ask Questions

Coping:

Denial/Pretty Amazing

Go to be Alone

Stay for Procedures

We Fight

Family Life:

Coming Home

Team Decisions

More Important Than Work

Visiting & IV's: A 5 Year Old Sibling View

Jake and the Hospital

Trips to the Hospital

Cardiac ICU

Anticipation

Handing Him Over

Behave
Badge of Courage

Used to the Hospital

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Quicktime

These videos are QuickTime movies and may take a couple of minutes to download, depending on the speed of your internet connection. You must have Quicktime Movie player installed on your computer in order to view these movies. Click here to download the Free Quicktime player.

 

 
   Copyright © 2007, Children's Hospital Boston
Department of Psychiatry.
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The information on this website should not be taken as medical advice, which can only be given to you by your personal health care professional.

Updated February 1, 2007
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