The following thoughts, reflections, recommendations,
etc. were gathered from the cardiology clinical staff:
• Telling
a child about a defibrillator.
Kathleen Barrett,
RN, MSN, PNP (Pediatric Nurse Practitioner)
• What
is a pediatric nurse practitioner and heart transplant coordinator?
Heather
Bastardi, RN, MSN, PNP (Pediatric Nurse Practitioner)
• What do
parents want to know?
• Considerations in the school setting.
David Ray
DeMaso, MD, Child & Adolescent Psychiatrist
• Tips
for talking about catheterizations and hospitalizations
Beth Donegan-Driscoll,
Child Life Specialist
• Family
centered care is important
Patricia
A. Hickey, RN, VP Cardiovascular & Critical Care Programs
• Why different
answers to the same questions>
Richard A. Jonas, MD, Chief of Cardiovascular Surgery,
Children’s National Medical Center, Washington, DC
• Importance
of telling good and bad news
Peter Lang,
MD, Staff Cardiologist
• How do you
describe an ECHO (echocardiogram) to a child?
Gerald R.
Marx, MD, Staff Cardiologist
• Describing
the Fontan repair
• How much do kids need to know
about an operation or catheterization?
• Explaining Kawasaki's Disease
to Children
• The commonest parent questions
Jane Newburger,
MD, Associate Cardiologist-in-Chief
• Making
the transition from the hospital to home
Patricia
O'Brien, RN, MSN, PNP (Pediatric Nurse Practitioner)
• If I wanted to talk
to another family whose child had the same or a similar diagnosis,
what would I need to do?
Christine Rich,
MS, RN
• Recommendations
for parents living with a child with a heart problem
• Making things easier to come to
the clinic, hospital, etc.
• Thoughts for newly diagnosed or
chronically ill children
• Working with the cardiologist
Leslie B.
Smoot, MD, Staff Cardiologist
